Health literacy strengths and challenges of people in New South Wales prisons: a cross-sectional survey using the Health Literacy Questionnaire (HLQ) | BMC Public Health

  • Helen Fair and Roy Walmsley. World Prison Population List 13th Edition. United Kingdom: World Prison Brief, Institute for Crime & Justice Policy Research; 2021 Available from: https://www.prisonstudies.org/sites/default/files/resources/downloads/world_prison_population_list_13th_edition.pdf. Accessed 6 Sep 2022.

  • Australian Bureau of Statistics. Corrective Services, Australia, September Quarter 2022: Australian Bureau of Statistics; 2022 Available from: https://www.abs.gov.au/statistics/people/crime-and-justice/corrective-services-australia/latest-release. Accessed 1 Feb 2023.

  • Australian Bureau of Statistics. New South Wales 2021 Census Aboriginal and/or Torres Strait Islander people QuickStats: Australian Bureau of Statistics; 2022. Available from: https://www.abs.gov.au/census/find-census-data/quickstats/2021/IQS1. Accessed 10 Nov 2022.

  • Fazel S, Baillargeon J. The health of prisoners. Lancet. 2011;377(9769):956–65.

    Article 
    PubMed 

    Google Scholar
     

  • Binswanger IA, Krueger PM, Steiner JF. Prevalence of chronic medical conditions among jail and prison inmates in the USA compared with the general population. J Epidemiol Community Health. 2009;63(11):912–9.

    Article 
    CAS 
    PubMed 

    Google Scholar
     

  • Binswanger IA, Merrill JO, Krueger PM, White MC, Booth RE, Elmore JG. Gender differences in chronic medical, psychiatric, and substance-dependence disorders among jail inmates. Am J Public Health. 2010;100(3):476–82.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Dumont DM, Brockmann B, Dickman S, Alexander N, Rich JD. Public Health and the Epidemic of Incarceration. In: Fielding JE, editor. Annu Rev Public Health, Vol 33. Annual Review of Public Health. 332012. p. 325–39.

  • Herbert K, Plugge E, Foster C, Doll H. Prevalence of risk factors for non-communicable diseases in prison populations worldwide: a systematic review. Lancet. 2012;379(9830):1975–82.

    Article 
    PubMed 

    Google Scholar
     

  • Australian Institute of Health and Welfare. The health of Australia’s prisoners 2018. Canberra: AIHW; 2019. Available from: https://www.aihw.gov.au/reports/prisoners/health-australia-prisoners-2018. Accessed 10 Aug 2022.

  • Justice Health and Forensic Mental Health Network. 2015 Network Patient Health Survey Report. Sydney, New South Wales, Australia: Justice Health and Forensic Mental Health Network; 2017. Available from: https://www.justicehealth.nsw.gov.au/publications/2015_NHPS_FINALREPORT.pdf. Accessed 10 Aug 2022.

  • Field C, Archer V. Comparing health status, disability, and access to care in older and younger inmates in the New South Wales corrections system. Int J Prison Health. 2019;15(2):153–61.

    Article 
    PubMed 

    Google Scholar
     

  • UN General Assembly. United Nations Standard Minimum Rules for the Treatment of Prisoners (the Nelson Mandela Rules) : resolution / adopted by the General Assembly. 8 January 2016. Report No.: A/RES/70/175. Available from: https://www.un.org/en/events/mandeladay/mandela_rules.shtml. Accessed 10 Aug 2022.

  • Lines R. From equivalence of standards to equivalence of objectives: The entitlement of prisoners to health care standards higher than those outside prisons. Int J Prison Health. 2006;2(4):269–80.

    Article 

    Google Scholar
     

  • Baybutt M, Chemlal K. Health-promoting prisons: theory to practice. Glob Health Promot. 2016;23(1_suppl):66–74.

    Article 
    PubMed 

    Google Scholar
     

  • Nutbeam D, Lloyd JE. Understanding and Responding to Health Literacy as a Social Determinant of Health. Annu Rev Public Health. 2021;42:159–73.

    Article 
    PubMed 

    Google Scholar
     

  • Sørensen K, Van den Broucke S, Fullam J, Doyle G, Pelikan J, Slonska Z, et al. Health literacy and public health: a systematic review and integration of definitions and models. BMC Public Health. 2012;12(1):80.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Peerson A, Saunders M. Health literacy revisited: what do we mean and why does it matter? Health Promot Int. 2009;24(3):285–96.

    Article 
    PubMed 

    Google Scholar
     

  • Liu C, Wang D, Liu C, Jiang J, Wang X, Chen H, et al. What is the meaning of health literacy? A systematic review and qualitative synthesis. Fam Community Health. 2020;8(2):e000351.

    Article 

    Google Scholar
     

  • Urstad KH, Andersen MH, Larsen MH, Borge CR, Helseth S, Wahl AK. Definitions and measurement of health literacy in health and medicine research: a systematic review. BMJ Open. 2022;12(2):e056294.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • World Health Organization. Health Literacy Development for the Prevention and Control of Noncommunicable Diseases; Final Report of the GCM/NCD Member State-Led Global Working Group on Health Education and Health Literacy for NCDs. In: World Health Organisation, editor. Geneva, Switzerland 2022. https://www.who.int/groups/gcm/health-literacy-development-for-ncd-prevention-and-control. Accessed 13 Dec 2022.

  • Australian Bureau of Statistics. Health Literacy, Australia, 2006 Canberra: Australian Bureau of Statistics; 2008. updated 24 July 2008. Available from: https://www.abs.gov.au/ausstats/[email protected]/Latestproducts/4233.0Main%20Features22006?opendocument&tabname=Summary&prodno=4233.0&issue=2006&num=&view=. Accessed 10 August 2022.

  • Barber M, Staples M, Osborne R, Clerehan R, Elder C, Buchbinder R. Up to a quarter of the Australian population may have suboptimal health literacy depending upon the measurement tool: results from a population-based survey. Health Promot Int. 2009;24(3):252–61.

    Article 
    PubMed 

    Google Scholar
     

  • Berkman ND, Sheridan SL, Donahue KE, Halpern DJ, Crotty K. Low health literacy and health outcomes: an updated systematic review. Ann Intern Med. 2011;155(2):97–107.

    Article 
    PubMed 

    Google Scholar
     

  • Beauchamp A, Buchbinder R, Dodson S, Batterham RW, Elsworth GR, McPhee C, et al. Distribution of health literacy strengths and weaknesses across socio-demographic groups: a cross-sectional survey using the Health Literacy Questionnaire (HLQ). BMC Public Health. 2015;15(1):678.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Van der Heide I, Wang J, Droomers M, Spreeuwenberg P, Rademakers J, Uiters E. The relationship between health, education, and health literacy: results from the Dutch adult literacy and life skills survey. J Health Commun. 2013;18(Suppl. 1):172–84.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Altin SV, Finke I, Kautz-Freimuth S, Stock S. The evolution of health literacy assessment tools: a systematic review. BMC Public Health. 2014;14:1207.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Haun JN, Valerio MA, McCormack LA, Sørensen K, Paasche-Orlow MK. Health literacy measurement: an inventory and descriptive summary of 51 instruments. J Health Commun. 2014;19(sup2):302–33.

    Article 
    PubMed 

    Google Scholar
     

  • Guzys D, Kenny A, Dickson-Swift V, Threlkeld G. A critical review of population health literacy assessment. BMC Public Health. 2015;15(1):215.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Huizinga MM, Elasy TA, Wallston KA, Cavanaugh K, Davis D, Gregory RP, et al. Development and validation of the Diabetes Numeracy Test (DNT). BMC Health Serv Res. 2008;8(1):96.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Chou H-L, Lo Y-L, Liu C-Y, Lin S-C, Chen Y-C. Development and psychometric evaluation of the cancer health literacy scale in newly diagnosed cancer patients. Cancer Nurs. 2020;43(5):E291–303.

    Article 
    PubMed 

    Google Scholar
     

  • Osborne RH, Cheng CC, Nolte S, Elmer S, Besancon S, Budhathoki SS, et al. Health literacy measurement: embracing diversity in a strengths-based approach to promote health and equity, and avoid epistemic injustice. BMJ Glob Health. 2022;7(9):e009623.

    Article 
    PubMed Central 

    Google Scholar
     

  • Passi R, Kaur M, Lakshmi PVM, Cheng C, Hawkins M, Osborne RH. Health literacy strengths and challenges among residents of a resource-poor village in rural India: Epidemiological and cluster analyses. PLOS Global Public Health. 2023;3(2):e0001595.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Osborne RH, Batterham RW, Elsworth GR, Hawkins M, Buchbinder R. The grounded psychometric development and initial validation of the Health Literacy Questionnaire (HLQ). BMC Public Health. 2013;13(658):1–17.


    Google Scholar
     

  • Mehay A, Meek R, Ogden J. Understanding and supporting the health literacy of young men in prison: a mixed-methods study. Health Educ. 2021;121(1):93–110.

    Article 

    Google Scholar
     

  • Sørensen K, Van den Broucke S, Pelikan JM, Fullam J, Doyle G, Slonska Z, et al. Measuring health literacy in populations: illuminating the design and development process of the European Health Literacy Survey Questionnaire (HLS-EU-Q). BMC Public Health. 2013;13(1):948.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Justice Health and Forensic Mental Health Network. 2021 Health Literacy Study: People in NSW Prisons and a High Secure Forensic Mental Health Setting. Sydney, New South Wales, Australia: Justice Health and Forensic Mental Health Network; 2022. Available from: https://www.justicehealth.nsw.gov.au/publications/2021-health-literacy-study-report-final-web-version.pdf. Accessed 10 Aug 2022.

  • Inspector of Custodial Service. Health services in NSW correctional facilities. Sydney, New South Wales, Australia: Inspector of Custodial Service; 2021. Available from: https://www.inspectorcustodial.nsw.gov.au/content/dam/dcj/icsnsw/documents/Health_Services_in_NSW_Correctional_Facilities.pdf. Accessed 7 June 2022.

  • Israel GD. Determining Sample Size University of Florida Cooperative Extension Service, Institute of Food and Agriculture Sciences, EDIS. 1992;25:2017.

  • NSW Bureau of Crime Statistics and Research. New South Wales Custody Statistics Quarterly Update June 2020. Sydney, New South Wales, Australia: NSW Bureau of Crime Statistics and Research (BOSCAR); 2020. Available from: https://www.bocsar.nsw.gov.au/Publications/custody/NSW_Custody_Statistics_Mar2021.pdf. Accessed 10 Aug 2022.

  • Qualtrics. Qualtrics Offline Surveys. Provo, Utah: Qualtrics; 2020.


    Google Scholar
     

  • Arsenović S, Oyewole O, Trajković G, Osborne RH, Wiltshire-Fletcher M, Gazibara T, et al. Linguistic adaptation and psychometric properties of the health literacy questionnaire in serbian language among people with chronic diseases. Chronic Illn. 2022;0(0):17423953221102630.

  • Do Ó DN, Goes AR, Elsworth G, Raposo JF, Loureiro I, Osborne RH. Cultural Adaptation and Validity Testing of the Portuguese Version of the Health Literacy Questionnaire (HLQ). Int J Environ Res Public Health. 2022;19(11):6465.

  • Boateng MA, Agyei-Baffour P, Angel S, Enemark U. Translation, cultural adaptation and psychometric properties of the Ghanaian language (Akan; Asante Twi) version of the Health Literacy Questionnaire. BMC Health Serv Res. 2020;20(1):1064.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Budhathoki SS, Hawkins M, Elsworth G, Fahey MT, Thapa J, Karki S, et al. Use of the English Health Literacy Questionnaire (HLQ) with Health Science University Students in Nepal: A Validity Testing Study. Int J Environ Res Public Health. 2022;19(6):3241.

  • Debussche X, Lenclume V, Balcou-Debussche M, Alakian D, Sokolowsky C, Ballet D, et al. Characterisation of health literacy strengths and weaknesses among people at metabolic and cardiovascular risk: Validity testing of the Health Literacy Questionnaire. SAGE Open Med. 2018;6:2050312118801250.

    Article 
    PubMed 

    Google Scholar
     

  • Elsworth GR, Beauchamp A, Osborne RH. Measuring health literacy in community agencies: a Bayesian study of the factor structure and measurement invariance of the health literacy questionnaire (HLQ). BMC Health Serv Res. 2016;16(1):508.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Huang Y, Ruan T, Yi Q, Wang T, Guo Z. The health literacy questionnaire among the aged in Changsha, China: confirmatory factor analysis. BMC Public Health. 2019;19(1):1220.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Maindal HT, Kayser L, Norgaard O, Bo A, Elsworth GR, Osborne RH. Cultural adaptation and validation of the Health Literacy Questionnaire (HLQ): robust nine-dimension Danish language confirmatory factor model. Springerplus. 2016;5(1):1232.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Mbada CE, Johnson OE, Oyewole OO, Adejube OJ, Fatoye C, Idowu OA, et al. Cultural adaptation and psychometric evaluation of the Yoruba version of the Health Literacy Questionnaire. Ann Ig. 2022;34(1):54–69.

    CAS 
    PubMed 

    Google Scholar
     

  • Nolte S, Osborne RH, Dwinger S, Elsworth GR, Conrad ML, Rose M, et al. German translation, cultural adaptation, and validation of the Health Literacy Questionnaire (HLQ). PLoS One. 2017;12(2):e0172340.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Park JH, Osborne RH, Kim HJ, Bae SH. Cultural and linguistic adaption and testing of the Health Literacy Questionnaire (HLQ) among healthy people in Korea. PLoS ONE. 2022;17(8):e0271549.

    Article 
    CAS 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Rababah JA, Al-Hammouri MM, Aldalaykeh M. Validation and measurement invariance of the Arabic Health Literacy Questionnaire. Heliyon. 2022;8(4):e09301.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Rademakers J, Waverijn G, Rijken M, Osborne R, Heijmans M. Towards a comprehensive, person-centred assessment of health literacy: translation, cultural adaptation and psychometric test of the Dutch Health Literacy Questionnaire. BMC Public Health. 2020;20(1):1850.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Urstad KH, Andenaes R, Wahl AK, Kvarme LG, Helseth S, Moum T. The health literacy questionnaire: initial validity testing in a Norwegian sample. Health Lit Res Pract. 2020;4(4):e190–9.

    PubMed 
    PubMed Central 

    Google Scholar
     

  • Wahl AK, Hermansen Å, Osborne RH, Larsen MH. A validation study of the Norwegian version of the Health Literacy Questionnaire: a robust nine-dimension factor model. Scand J Public Health. 2021;49(4):471–8.

    Article 
    PubMed 

    Google Scholar
     

  • Zhang L, Ding D, Fethney J, Gallagher R. A psychometric evaluation of the Health Literacy Questionnaire for Chinese immigrants: Linguistic and cultural considerations. Int J Nurs Pract. 2021;27(2): e12909.

    Article 
    PubMed 

    Google Scholar
     

  • IBM Corp. IBM SPSS Statistics for Windows, Version 27.0. Armonk: IBM Corp; 2020.


    Google Scholar
     

  • Welch BL. On the comparison of several mean values: an alternative approach. Biometrika. 1951;38(3–4):330–6.

    Article 

    Google Scholar
     

  • Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale: L. Erlbaum Associates; 1988.


    Google Scholar
     

  • Kirk RE. Practical significance: a concept whose time has come. Educ Psychol Measur. 1996;56(5):746–59.

    Article 

    Google Scholar
     

  • Tavakol M, Dennick R. Making sense of Cronbach’s alpha. Int J Med Educ. 2011;2:53–5.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • George D, Mallery P. SPSS for Windows step by step : a simple guide and reference 11.0 update. Boston: Allyn and Bacon; 2003.


    Google Scholar
     

  • Australian Bureau of Statistics. Table 2 – Health Literacy Survey 2018. Canberra, Australian Capital Territory, Australia: Australian Bureau of Statistics (ABS); 2019. Available from: https://www.abs.gov.au/statistics/health/health-conditions-and-risks/national-health-survey-health-literacy/latest-release. Accessed 10 Aug 2022.

  • Augsburger A, Neri C, Bodenmann P, Gravier B, Jaquier V, Clair C. Assessing incarcerated women’s physical and mental health status and needs in a Swiss prison: a cross-sectional study. Health and Justice. 2022;10(1):8.

  • Covington SSPL. Women and the criminal justice system. Womens Health Issues. 2007;17(4):180–2.

    Article 
    PubMed 

    Google Scholar
     

  • Crissman B, Smith C, Ransley J, Allard T. Women’s health in queensland prisons. Int J Offender Ther Comp Criminol. 2017;61(5):582–603.

    Article 
    PubMed 

    Google Scholar
     

  • Parker J, Kilroy D, Hirst J. Women, Health and Prisons in Australia. 1st ed. Oxford: CRC Press; 2009. p. 45–54.


    Google Scholar
     

  • van den Bergh BJ, Gatherer A, Møller LF. Women’s health in prison: urgent need for improvement in gender equity and social justice. Bulletin of the World Health Organization. 2009;87(6):406.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Fazel S, Bains P, Doll H. Substance abuse and dependence in prisoners: a systematic review. Addiction (Abingdon, England). 2006;101(2):181–91.

    Article 
    PubMed 

    Google Scholar
     

  • Bartels L, Easteal P, Westgate R. Understanding Women’s Imprisonment in Australia. Women Crim Justice. 2020;30(3):204–19.

    Article 

    Google Scholar
     

  • Ahmed R, Angel C, Martel R, Pyne D, Keenan L. Access to healthcare services during incarceration among female inmates. Int J Prison Health. 2016;12(4):204–15.

    Article 
    PubMed 

    Google Scholar
     

  • Carroll M, Kinner SA, Heffernan EB. Medication use and knowledge in a sample of Indigenous and non-Indigenous prisoners. Aust N Z J Public Health. 2014;38(2):142–6.

    Article 
    PubMed 

    Google Scholar
     

  • Davy C, Harfield S, McArthur A, Munn Z, Brown A. Access to primary health care services for Indigenous peoples: a framework synthesis. Int J Equity Health. 2016;15(1):163.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Kariminia A, Butler T, Levy M. Aboriginal and non-Aboriginal health differentials in Australian prisoners. Aust N Z J Public Health. 2007;31(4):366–71.

    Article 
    PubMed 

    Google Scholar
     

  • Krieg AS. Aboriginal incarceration: health and social impacts. Med J Aust. 2006;184(10):534–6.

    Article 
    PubMed 

    Google Scholar
     

  • Ogloff JRP, Pfeifer JE, Shepherd SM, Ciorciari J. Assessing the mental health, substance abuse, cognitive functioning, and social/emotional well-being needs of aboriginal prisoners in Australia. J Correct Health Care. 2017;23(4):398–411.

    Article 
    PubMed 

    Google Scholar
     

  • Rose A, Trounson J, Skues J, Daffern M, Shepherd SM, Pfeifer JE, et al. Psychological wellbeing, distress and coping in Australian Indigenous and multicultural prisoners: a mixed methods analysis. Psychiatr Psychol Law. 2019;26(6):886–903.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Baidawi S, Turner S, Trotter C, Browning C, Collier P, O’Connor D, et al. Older prisoners : a challenge for Australian corrections. Trends Issues Crime Crim Justice. 2011;426:1–8.


    Google Scholar
     

  • Khatri RB, Assefa Y. Access to health services among culturally and linguistically diverse populations in the Australian universal health care system: issues and challenges. BMC Public Health. 2022;22(1):880.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Ross CE, Wu C-l. The Links Between Education and Health. Am Sociol Rev. 1995;60(5):719–45.

    Article 

    Google Scholar
     

  • Hjalmarsson R, Holmlund H, Lindquist MJ. The effect of education on criminal convictions and incarceration: causal evidence from micro-data. Econ J. 2015;125(587):1290–326.

    Article 

    Google Scholar
     

  • Veselak KM. The Relationship between Educational Attainment and the Type of Crime Committed by Incarcerated Offenders. J Correct Educ (1974). 2015;66(2):30–56.


    Google Scholar
     

  • Corrective Services NSW. Classification and Placement. Corrective Services NSW; 2019. Available from: https://www.correctiveservices.dcj.nsw.gov.au/documents/csnsw-fact-sheets/classification-and-placement.pdf. Accessed 10 Aug 2022.

  • Hawkins M, Elsworth GR, Nolte S, Osborne RH. Validity arguments for patient-reported outcomes: justifying the intended interpretation and use of data. J Patient Rep Outcomes. 2021;5(1):64.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • American Educational Research Association, America Psychology Association, and National Council on Measurement in Education. Standards for educational and psychological testing. American Educational Research Association APA, and National Council on Measurement in Education, editor. Washington, DC: American Educational Research Association; 2014.

  • Crichton P, Carel H, Kidd IJ. Epistemic injustice in psychiatry. BJPsych Bull. 2017;41(2):65–70.

    Article 
    PubMed 
    PubMed Central 

    Google Scholar
     

  • Kane M, Mislevy R. Validating Score Interpretations Based on Response Processes. 1 ed: Routledge; 2017. p. 11–24.

  • Kane MT. An Argument-Based Approach to Validation. ACT Research Report Series. 1990.

    Book 

    Google Scholar
     

  • Kane MT. An argument-based approach to validity. Psychol Bull. 1992;112(3):527–35.

    Article 

    Google Scholar
     

  • Kane MT. Current concerns in validity theory. J Educ Meas. 2001;38(4):319–42.

    Article 

    Google Scholar
     

  • Kane MT. Validation. In: Brennan RL, editor. Education Measurement. 4th ed. Westport: American Council on Education/Praeger; 2006. p. 17–64.


    Google Scholar
     

  • Kane MT. Validating the Interpretations and Uses of Test Scores. J Educ Meas. 2013;50(1):1–73.

    Article 

    Google Scholar
     

  • Lloyd JE, McEntyre E, Baldry E, Trofimovos J, Indig D, Abbott P, et al. Aboriginal and non-aboriginal Australian former prisoners’ patterns of morbidity and risk of hospitalisation. Int J Equity Health. 2017;16(1):3.

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